tag:blogger.com,1999:blog-6261822888352837245.post3129667541738707713..comments2014-12-14T05:39:28.354-08:00Comments on Anna's World: We are in the hospitalanna's mommyhttp://www.blogger.com/profile/03300565223802705506noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6261822888352837245.post-51414092860282320592011-12-02T09:11:11.761-08:002011-12-02T09:11:11.761-08:00Thanks Sara. Anna got blood transfusion and her co...Thanks Sara. Anna got blood transfusion and her count looks better now. Only problem is we are afraid of putting a breathing tube down her throat. If it irritate her airway it will affect her breathing. Airway is a serious issue in babies with junctional EB herlitz. I will check on FB.anna's mommyhttps://www.blogger.com/profile/03300565223802705506noreply@blogger.comtag:blogger.com,1999:blog-6261822888352837245.post-10847625137235117542011-12-02T08:53:02.532-08:002011-12-02T08:53:02.532-08:00also, if you are on Facebook there are MANY EB gro...also, if you are on Facebook there are MANY EB groups you can ask questions this these and get advice for other parents of JEB kids.Sara Denslawhttps://www.blogger.com/profile/09625588629095084632noreply@blogger.comtag:blogger.com,1999:blog-6261822888352837245.post-61099383569546691772011-12-02T08:52:23.258-08:002011-12-02T08:52:23.258-08:00g-tube surgery is very short, like 20-30 minutes. ...g-tube surgery is very short, like 20-30 minutes. she wouldn't have to be intubated very long. but I don't know anyone with JEB who has a g-tube that didn't have to be intubated. Just make her anemia is better before the surgery. If her blood counts are too low, her heart could stop during the surgery.Sara Denslawhttps://www.blogger.com/profile/09625588629095084632noreply@blogger.com